Tuesday, December 15, 2009

Shane is officially a star!!


I just registered a star in the International Star Registry - it's name? Shane Michael Jeffery! It is located in the Hercules Constellation - it's exact location is ~Hercules 16h 34m 51.70s 32 25' 54.55"~ Whatever that means...


So next time you think of wishing on a star, this would be a good one to wish on!


XOXO

Saturday, October 31, 2009

Halloween

Remembering Shane on Halloween...and always wishing I had my little man here all dressed up with his brothers.

Tuesday, October 27, 2009

Time flies...even if you're not having fun...

Yesterday, October 26th, was the 2 year mark of the day we had our confirming ultrasound of Shane diagnosing him with his syndrome. Most of you don't know, that was just the icing on the cake when it came to the neverending tragedies that just seemed to be happening one after another in our lives at that time. First, it was driving to dinner one night, and just happening to drive over a manhole cover that was too high in the road (in the middle of a busy residential street might I add), and then trying to fight the city to pay for our repairs, which never happened. Somehow that manhole cover did get fixed pretty quick though... Then mysteriously, our 4 year old heating system just wasn't coming on when the cold weather set in, so we were left trying to find a way to pay someone to come look at that and fix it. When it seemed like things couldn't possibly get any worse, we were told that the baby that was growing inside me, every single dream of happiness and hope that we had left at this point, wasn't going to survive. Even if Shane had been healthy, I was worried about how much time I'd be able to take off work and still have our bills get paid. Now I had to wonder when I'd ever be able to go back to work considering what I was about to go through... I had no idea how we were going to make it. I not only had the weight of the world on my shoulders when it came to dealing with our family's loss, I also had the burden of financial stress. Throughout the past 2 years, I have been strong. I've stayed positive, and somehow I still see the light at the end of the tunnel, so to speak. I wouldn't be able to see things in such a positive light if it weren't for meeting the most wonderful man on the face of the planet 13 years ago. But this time of year, when the leaves start to change and fall comes around, I can't help but fall back into those feelings I had when all of these things were hitting us, all at the same time. I can't help but remember how I felt the day I found out, how I couldn't say anything but "okay" when they told me my son's syndrome was fatal. The true definition of "speechless". Financial stress is hard for anyone, I understand, but when you have to relive something like this year after year, and know that all of your financial problems NOW are linked to what happened THEN, it makes it 100 times more difficult to bear and that much harder to see the end. That light at the end of the tunnel gets pretty dim. I'm not asking for sympathy, or help, or anything. I'm simply just "getting it out", getting it off my chest. Okay, so maybe just some prayers that our jobs stay around and get us through the winter, that everyone stays healthy, and that no more of these bad things make their way into our lives. On a scale of "excellent-very good-good-poor-very poor-the dumps": things overall are good right now; I'm here, I'm alive, I'm healthy, I have 2 healthy beautiful baby boys with me every single day and an amazing husband on top of it to keep me smiling. Together, we can do anything. We will make it!

Tuesday, October 6, 2009

An excerpt from the letter I wrote to Shane just weeks after he died...

"I have so much to thank you for. Thank you for showing me the only thing that is truly important in life - to give love and to be loved. Thank you for showing me how to love Miles and your daddy, and all of our friends and family with my whole self. Thank you for giving me a new pair of eyes so that I can see your big brother Miles for what he really is; not just as a great kid and the love of my life, but as a truly precious gift. Each day I have with him and your daddy on this earth is a true blessing and a miracle. Thank you for bringing me even closer to your daddy. You have blessed our marriage and made it so much stronger than ever before. Thank you for teaching me not to take anything for granted. And although it is a hard lesson to learn, and I am still learning it, I thank you for teaching me that there are no guarantees in this life. Having this kind of enlightenment makes me truly appreciate each and every (even the littlest) day to day pleasures. To think that you are so little and so innocent and that you didn't even get a chance to live one second of time on this earth, yet you taught me all of these things - this is truly amazing to me. You are my little angel, my little inspiration, my little guiding light in life and you will be all of those things forever. You are and always will be a remarkable, inspiring, and unforgettable little man. I love you so much. I can't say that enough. I love you, I love you, I love you."

NILMDTS Slideshow from Shane's Birth

This is a slideshow of pictures that were taken after Shane's birth. They were taken by a photographer, Sue O'Malley, from Now I Lay Me Down To Sleep. Please see the link at the right of my blog to learn more about this wonderful organization. They provide beautiful experienced photography services free of charge to families who are losing their babies. Sue not only took these pictures for us, she then personally dropped off a package at our doorstep just a few days after Shane was born. It contained 2 CD's of all of the pictures she took, 1 in color and 1 in black & white, 1 DVD slideshow with music we had picked, a framed picture of both Mike and I holding Shane, and some other little gifts. Little did I know, Sue was also a doula! She not only took over the role of our birth photographer, but also took charge of my care before I delivered Shane, and helped me through the toughest part of it all. I was in labor for 28 hours with him. Thank God for SUE!! Enjoy the slideshow.

National Pregnancy and Infant Loss Awareness

Please take a moment on Thursday, October 15th, at 7:00 PM and light a candle for our angels. Participate in the "Wave of Light"! You can visit http://www.october15th.com/ for more information about this national holiday and the Wave of Light. There are also links to other helpful websites dealing with Pregnancy and Infant Loss. A loss is a loss, no matter when it happens.

Remembering Shane

These are some of the things we have done over the past 2 years or so, to remember Shane. I will continue to post new things that we do for him!
  • Mommy wears a necklace with 2 charms on it - one charm is from our friends Christie & Dan, and says "Mommy's Angel - Shane Michael - 11-8-07" and has his birthstone - and the other one is the symbol (figure 8) for "infinity".
  • We hung a photo collage of some of the pictures from Shane's birth right next to our front door. This is where a ball of light showed up in our Christmas pictures of Miles.
  • Mike and I got our matching memorial tattoos done on April 3rd & 4th, 2008. They were done at Wolf's Fine Line Tattoo in Joliet, Illinois by Doc.
  • "Shane's Gang" walked the 6.2 mile March for Babies in downtown Chicago on Sunday, April 27, 2008! As a team, we raised an unbelievable grand total of $3,980 for the March of Dimes in memory of our precious baby boy, Shane. Thank you so much to everyone who made it such a successful day! We will never forget it!
  • We threw a Luau at our home on Saturday, June 7, 2008 to thank everyone who walked or sponsored our team in the March for Babies, as well as many other family and friends to say thank you for everything that they did for us to help us deal with the loss of our baby boy! Our fundraising was a huge success thanks to everyone!!
  • On Saturday, November 8, 2008, we celebrated Shane's 1st birthday. We had a family dinner that night with Shane's Grandma & Grandpa Theres, his Aunt Genia & Uncle Bill and cousins Izabella & Lucas, and of course his mommy, daddy, and big brother Miles. His Grandma Cindy said a beautiful prayer before dinner to help us remember him. After dinner, the boys blew out Shane's candle on his birthday cupcake, and then Miles took his balloon bouquet outside and let it go with his birthday card attached. Thank you to all the people who signed Shane's card.
  • We try to remember Shane in everything we do. Our family took a trip to Florida in December 2008 to visit his Grandma and Grandpa Jeffery. It seems like everywhere we go, everything we do together, no matter where we are, butterflies seem to show up around us. We are convinced that this is Shane's way of visiting with us, and letting us know he's there with us and still a part of our family as he always will be. We saw butterflies when we were swimming together in Grandma and Grandpa's pool, when we were waiting in line at Disney for a ride, and even when daddy went fishing with Grandpa and his brothers! We also saw a ton of butterflies all summer long in our backyard, especially when we put in our pool and we were all swimming in it together! Thank you Shane! Keep on visiting!
  • Shane was a part of our 2008 Christmas portraits. The little white teddy bear that we took home from the hospital was in all of our pictures.
  • Once again, Shane's Gang walked in the March for Babies in downtown Chicago on Sunday, April 26, 2009. Although it poured rain all over us, we had a blast!! Thank you to Shannon, Joyce, Lyndsey, Amanda, & Mike, and of course to everyone who sponsored us! We raised close to $2000! See ya next year!
  • In November 2008, I spoke at a Bereavement Conference at Rush Copley Medical Center about Shane. I was 1 of 3 parents who spoke about their experience. It was a conference for doctors, nurses, and other hospital staff, to educate them on how to handle these situations best (things to say, things not to say, etc.). I was so happy and felt so privileged to share my story with so many people who didn't know it, and so many who could learn from it! I plan on speaking at the conference again this year.
  • Yearly in December, I will attend the Remembrance Ceremony put on at Rush Copley Medical Center by the Perinatal Bereavement Coordinator Peggy O'Connell. I attend as both a staff member and a parent who has lost a child at birth, and sit at a table to help facilitate conversation between families, hopefully helping them work through their losses. I also share the photo album of the pictures taken at Shane's birth.
  • We will once again celebrate Shane's birthday this year, November 8, 2009. He would have been 2 years old. Sometimes I can't believe it's been this long. We still miss him just as much as the first moment he was gone, if not more.
  • Mike and I have been asked to join the March of Dimes Family Team Committee this year. We would love to get Shane's Gang more recognized! Spread the word!!! Shane's Gang will be walking again in the spring of 2010! Stay tuned for more info.